My hope for this blog spot is that everyone, everywhere who has been touched by Cystic Fibrosis in any way can come and read my or my daughter-in-laws blog and many more that I can put you in touch with.** We can all share experiences and help each other to better our loved ones lives. I still have a 27 year old CF son who still lives with us. This is my first entry, more later. Thanks to everyone, all the wonderful doctors who have helped my sons stay healthy, the CF Foundation, CFRI who were the first to get us involved with the CF community and all of the fun fundraisers, the CF Community in general. They have been awesome to us. They are some of the greatest people you will ever meet! my daughter-in-law Graciy and her husband my son Josh (21) who got me started on this blog, my husband Lee without whom I wouldn't have had any children and especially my Lord and Savior Jesus Christ for blessing me with such a beautiful wonderful family. CF children are such a blessing!
** see side bar
About Me
- CF Mom
- Tampa, FL, United States
- I'm all about Family! My husband and I will be celebrating our 30th anniversary this coming April 20th. We have 5 children. 3 boys, Jordan 28 (does not have CF), Jeremiah 27 (has CF), and Joshua 21 (has CF-see CFWife.blogspot.com), and 2 girls, Tayleen 23 (does not have CF) and Kaleesha 21 (does not have CF). Yes she is the same age as Joshua. They are fraternal twins. Now that they are adults, and we now have grandchildren, 2 from Jordan, 1 from Josh and 1 from Kaleesha, we travel around the country chasing our children and grandchildren around. Watch for future blogs giving you more background into my life as a CF Mom raising two boys during the 80's and 90's with CF. You might be most interested in hearing about David Laird. He made history as the youngest CF patient to ever undergo a heart and lung transplant. He was my son Jeremiah's best friend. Unfortunately he died 3 months after the transplant. Details in the blog coming soon.
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Comments
Hey Joshes mom!!!
ReplyDeleteIm Kellee =)
Im so glad you found my blog! I have fallen in love with G and love hearing the story of her and J.
Let me give you kudos for having 2 cfers!!! wow!
Michael is a twin but the other dont have cf. I cant imagine 2 =/.
I hate to say it but...I'm being cautious about the loveandcf.blogspot.com page. Having been burned by the "Pepe" saga. I've asked the author to clarify why the med. info is all copy-pastes from other sites. Also, the user's Yahoo questions
ReplyDelete(user ID: Kellee J)
do not mesh with the loveandcf site.
I'm not accusing anyone of anything, but I am being cautious.
for Amanda,
ReplyDeleteI asked her to post all the med stuff for me and I know her personally and they are indeed real people and very nice caring and honest as well. thank you for caring it was nice of you but please get to know them. they have helped me a lot in learning about my husbands CF
For mom,
ReplyDeleteI am so happy you started this blog! and I hope you can help others like Kellee and her husband have helped Joshua and I. I love you times a million and you will always be my #1 place for CF info! I love you
I'm so glad you started this blog! I can't wait to learn from you. It's nice to know that there is a CF Mom blogger that has been through it all that I can come to if I ever have any questions in the future:)
ReplyDeleteM